Well the trip to the appointment on tuesday was rather interesting. it was a complete white out for the first 45 minutes, couldn't see five feet in front, beside or behind me, but i trudged on. white knuckles, tense shoulders and everything. once it got light out it wasn't so bad. still blowing snow, snow drifts and wind and etreme temps. but i felt i had to make this appointment no matter what it ook. and well we made it. i did get halfway and realized i didn't have my prurse with hunters health card in it. SMART. fortunately we didn't need it haha.
anyway on to the appointment. it was VERY VERY upsetting and frustrating for me:(. we were told about the CT scans from when he was first born and it was nothing like we were told. NOTHING. we were told he had a small bleed at the base of his brain, like a cut. no that is not what he had not in the least. he had a HUGE bleed in the back f his brain almost the size of his back of his head on one side. On top of this he had many tiny pbleeds on the top of his head on both sides. i questioned why...of scourse he didn't have the answers.i just can't fathom y this has been withheld from me:(. why no one told me. the only logical reason is to hide what really went wrong. this bleeding is caused by lack of o2 and blood supply suring delivery. UGH i just want to scream at the health care field.
We were told that this can be related to all the behaviour problems, his learning problems, the reason his eyes went so bad so fast...it can be all related. this is all so frustrating. The doctor wants to do another mri but not tellhe is older, about 12 years old, so he doesn't have to be put under. he says it won't show anything that he doesn't already know.
so i guess thats the appointment in a nutshell:(. not good news. but what can u do but move ahead
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Steph, I'm very sorry that you were left in the dark concerning Hunter's real state at birth. That doesn't sound right, and you could have rights to speak to a lawyer about it.
ReplyDeleteSecondly, Dylan has had 3 MRI's all under the age of 6 all on his brain and did NOT have to be put under for these. He was in the machine an hour each time, and actually went to sleep during the process [which is crazy since it is a loud machine]. SO...my point here is...THEY COULD do an MRI now if you pushed them to do so. Seriously, they could be risking missing out in very important information!!!! I would find a doctor that IS willing to give the green light for an MRI. But, I'm not familiar with Canada's health care system, so I don't know your options there.
Lots of prayers being sent your way!!!